Individual differences color the narrative of health & disease.
Share your story with experiMe™
It's time to rethink how we measure health. experiMe™ helps manage your health and wellness within the context of your unique routine. Share your story and join the conversation about precision medicine. Click below to complete your early registration so you can be the first to know when the app is available.
Interested in becoming a beta tester? These Users get an exclusive preview of experiMe™ in return for their feedback. Let us know by signing up below!
Your story is unique.
Have you noticed that everyone responds differently to lifestyle, diet, exercise, sun exposure, etc.? Has your experience with a disease been unique and hard to predict? By helping us understand the ways your genetics, lifestyle, and the world around you interacts with your health you support the trail-blazing efforts of our advisors and collaborators around the globe.
experiMe™ supports deep phenotyping
"Deep phenotyping" is the scientific term for a certain style of research. This type of research leverages statistics and big data management tools to make sense of large amounts of data. How much? Consider this: rather than focusing on one trial or set of experiements about a disease, a deep phenotyping researcher would want every detail about all the cases of that disease that have ever been reported. It's likey they would even want to know about other diseases with similar symptoms. The goal is to understand the full spectrum of health rather than a small sample.
experiMe™ is a mobile app developed by IDG to deliver a modern, personalized suite of wellness tracking tools. Differences in lifestyle, surroundings, and genetics all influence how we experience health and disease, and even how we respond to treatment. By combining lifestyle factors with health research, we can uncover an unprecedented level of detail that improves the way we diagnose, treat, and prevent diseases.
The experiMe team is committed to respecting the privacy rights of visitors and users of its mobile application experiMe and website indepthgenomics.com.
1.SUMMARY OF INFORMATION COLLECTION PRACTICES
1.1. What Basic Information does experiMe collect?
In operating the mobile application experiMe may include registration by First Name, Year of Birth, e-mail address, City of Residency and Gender.
1.2. Automatic Collection.
Our servers automatically recognize visitors’ domain names and IP addresses (the number assigned to computers on the Internet). No personal information about you is revealed in this process. The mobile application may also gather anonymous “traffic data” that does not personally identify you, but may be helpful to improve the content offered through experiMe.
1.3. Optional Disclosure of Information
We receive certain information from you when you create and use an experiMe account. When you use the application, you can choose to share certain information related to your health. For example:
(i) Information about your physical activity
You can choose to share information about your physical activity, such as information about your workouts.
(ii) Information about your diet
You can choose to share information relating to your diet, such as information on food eaten and dietary habits.
(iii) Information about medical history
You can choose to share information about your medical history, diseases or history of illness in your family.
- USE AND SHARING OF INFORMATION
2.1. Personal Information
Personal Information means information about you that can reasonably be linked to you such as your name, health information, and other identifiers.
We will not share your personal information with any third parties without your consent, except as described in Section 2.2. Below. We may use your contact information to inform you of any changes to the mobile application or to send you additional information.
2.2. Disclosure of Personal Information
We may disclose personal information if required to do so by law or in the good faith belief that such action is necessary to (1) conform to the law or comply with legal process served on experiMe and affiliates, (2) to protect and defend the rights or property of users of the Service, or (3) act under exigent circumstances to protect the safety of the public or users of the Service.
2.3. How experiMe uses your information
We receive this non identifying information from you for use in aggregate research and to provide Services, as well as to enhance the performance of the Services and/or create new services.
- YOUR RIGHTS AS A USER OF THE APPLICATION
If you have granted your consent for processing certain personal data, you are entitled to withdraw your consent at any time pursuant to data protection laws. However, that right does not affect the legitimacy of the processing of data carried out before you withdraw your consent. You also enjoy other rights, such as the right to access your data, the right to have wrong or misleading information about you to be rectified, the right to have your personal data deleted, the right to restrict that your personal data will be processed, the right to object and your right to data portability.
Please note that some of your rights may be subject to certain conditions.
- DATA FROM CHILDREN UNDER THE AGE OF 18
An Authorized Individual-Representative may authorize and/or have access to an experiMe account for a Dependent until the earlier of the date: (i) the Dependent reaches the age of 18; or (ii) the Authorized Individual-Representative is no longer the legal representative of the Dependent.
- PROTECTION OF PERSONAL INFORMATION
5.1. How We Protect Your Information
experiMe takes precautions, including administrative, technical and physical measures, to safeguard your personal data against loss, theft and misuse, as well as against unauthorized access, disclosure, alteration and destruction. We store the personal data you provide encrypted on computer servers that are located in controlled facilities. We restrict access to personal data to our employees, contractors and agents who need access in order to operate, develop, or improve our services and the application.
When you enter sensitive personal data in the application we encrypt the transmission of such data using secure socket layer technology (“SSL”). We follow generally accepted standards to protect the personal data submitted to us, both during transmission and once we receive it.
The safety and security of you Personal Information also depends on you. Never share your password with anyone else. Notify us promptly if you believe your password has been breached.
5.2. Security Breach Notification Requirements
Pursuant to applicable law, experiMe may be required to send you notice of security breaches or suspected security breaches that impact your Personal Information. In the unlikely event that experiMe must provide you a notice of a security breach, experiMe will send you security breach notices to the e-mail address contained in your account information unless we are otherwise required by law. Please note, many e-mail systems have built in SPAM filters. If you have on in place, you should check with your system administrator or the available instructions to confirm that e-mails from experiMe are not blocked by the filter.
- MORE INFORMATION
If you have additional questions, please contact experiMe at any time.
experiMe™ by In-Depth Genomics, LLC.
9350 NE 30th Street
Clyde Hill, WA 98004
I signed up for Health Stories – do I sign up for experiMe™ too?
All people who registed for Health Stories will recieve an email announcement when experiMe™ is available for download.
If you are interested in becoming a beta tester for experiMe™, please let us know by completing the experiMe™ registration.
Who should register?
Anyone! Everyone! – We all have goals for our health, and we all have experience problems achieving them. experiMe™ is personalized to reflect your own goals, so it’s intended for anyone interested in a new perspective on managing wellness.
Anyone interested in beta testing should apply via the registration button at the top of the page.
Patients with undiagnosed or rare disease are also encouraged to participate in the Raring to Go registry.
Please note that experiMe™ and Raring to Go are separate programs. Your participation in both is welcome and appreciated.
What’s next after signing up?
At IDG, we are dedicated to supporting our supporters – aka you.
Because experiMe™ is still in development, your early feedback helps determine where to focus our efforts. “Health” is a very broad subject, so we won’t be able to tackle everything in version 1. This information helps define our research plan, interest collaborators, and gives us an opportunity to build tools that will have an immediate impact for our community members.
What to expect after signing up:
- Everyone will receive a confirmation email that your information was successfully submitted.
- If you indicated an interest in beta testing, you will receive a separate follow up email from an IDG team member.
- Receive an email when experiMe™ becomes available for download.
- If you are interseted in receiving updates for the rare disease programs, please sign up via RaringtoGo!
Thanks in advance to our supporters – no matter why you’re here, your participation expedites better healthcare for us all.
What is “deep phenotyping”?
Deep phenotyping is the study of the full range of possibilities for a trait. This includes any changes in symptoms and health, and how they are impacted by lifestyle habits or environmental factors.
What is a “trait”? A trait is a defining, particular aspect of a person. A trait can be defined from many perspectives, ranging from molecular characteristics to physiology to behavior. In the context of medical research, this means “traits” are things like: results from a blood test, response to a medication, recovery time, frequency or severity of symptoms, mood, and many others.
Who sees my information?
We take your privacy seriously and never share personally identifying information with our research partners, clinical support team, or sponsors. Our team’s collective history in patient support and medical research guarantees that these standards are upheld at every program level. All team members are trained in HIPAA standards and procedures.
How will my information be used?
At this time your information will be used for internal process development and improvements. All data is anonymized and securely managed. No information will be used for research purposes without User consent.